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Hospitals not doing enough to advise parents of babies with Down syndrome

TheCopenhagenPost
October 28th, 2015


This article is more than 9 years old.

Couples feel pressured to have an abortion when other options aren’t offered

Parents of Down Syndrome children say they are not getting enough advice (photo: Jennifer1982)

Several hospital doctors and administrators have admitted they have failed parents with Down Syndrome. For many years, the advice to expectant parents has too often been to have an abortion.

“It is quite clear they have not been understood or listened to,” Sonja Kindt, the head doctor at the Hospitalenhed Midts women’s section, told DR Nyheder. “It becomes a question of right and wrong, and of course that is not what it is.”

Kindt said that she “regrets” that parents have not received the answers that they need.

READ MORE: Down Syndrome heading for extinction in Denmark

No choices offered
Rules established by Sundhedsstyrelsen, the board of health,  say that parents should be given what they need to make an informed choice.

Parents say that in many cases they are not being given information, just an appointment for an abortion.

“I didn’t feel that anyone listened to me,” Maja Rand, a parent of a child with Down Syndrome, told DR Nyheder. “The advice from the hospital was to terminate the pregnancy.”

Doctors at hospitals in Randers and Horsens also said they had failed the parents of children with Down Syndrome.

“This is incredibly distressing to hear,” Jette Seidelin, the head doctor at Hospitalsenhed Horsens, told DR Nyheder. “It is important to us that couples get the information they need to make the right decision, and that has not been happening in this situation.”

Seidelin denied that hospitals were attempting to discourage parents from having children with Down Syndrome.

“That is certainly not our intention,” said Seidelin.

Sundhedsstyrelsen said it will insist the guidelines for advising parents dealing with the potential of a child being born with Down Syndrome are complied with.


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A survey carried out by Megafon for TV2 has found that 71 percent of parents have handed over children to daycare in spite of them being sick.

Moreover, 21 percent of those surveyed admitted to medicating their kids with paracetamol, such as Panodil, before sending them to school.

The FOLA parents’ organisation is shocked by the findings.

“I think it is absolutely crazy. It simply cannot be that a child goes to school sick and plays with lots of other children. Then we are faced with the fact that they will infect the whole institution,” said FOLA chair Signe Nielsen.

Pill pushers
At the Børnehuset daycare institution in Silkeborg a meeting was called where parents were implored not to bring their sick children to school.

At Børnehuset there are fears that parents prefer to pack their kids off with a pill without informing teachers.

“We occasionally have children who that they have had a pill for breakfast,” said headteacher Susanne Bødker. “You might think that it is a Panodil more than a vitamin pill, if it is a child who has just been sick, for example.”

Parents sick and tired
Parents, when confronted, often cite pressure at work as a reason for not being able to stay at home with their children.

Many declare that they simply cannot take another day off, as they are afraid of being fired.

Allan Randrup Thomsen, a professor of virology at KU, has heavily criticised the parents’ actions, describing the current situation as a “vicious circle”.

“It promotes the spread of viruses, and it adds momentum to a cycle where parents are pressured by high levels of sick-leave. If they then choose to send the children to daycare while they are still recovering, they keep the epidemic going in daycares, and this in turn puts a greater burden on the parents.”